| Goal | To  
      support effective dissemination, communication, and utilization of HIV-related  
      research information to researchers, health care providers, HIV-related  
      service providers, HIV-positive individuals and their advocates, and all  
      constituencies of the NIH. | 
 
    
    | Objective  
      #1 | Support  
        the effective dissemination and utilization of HIV/AIDS information to  
        all constituent communities of NIH. | 
 
    
    | Description | Effective  
      Communication: Exchange of information about basic, clinical, and behavioral  
      HIV/AIDS research findings is essential to progress in research and ultimately  
      to improved care and treatment for HIV-infected people. The traditional  
      methods of reporting ongoing studies and research results in peer-reviewed  
      journals and at scientific meetings may be slow and may reach only limited  
      audiences. Health educators, health care providers, and patients, particularly  
      those in underserved communities, need to know the results of clinical and  
      prevention intervention studies, state-of-the-art recommendations, and the  
      most up-to-date standards of health care. This information should be timely,  
      include discussion of the potential implications of research findings for  
      patient care, and should be in a form that audiences can use. The latest  
      computer and information technologies should be exploited whenever appropriate.  
      The findings resulting from communications research should be incorporated  
      into the strategies to carry out this objective. | 
 
    
    | Action  
        Steps |  
         Rapidly  
          disseminate new research findings with information on their potential  
          implications on prevention, care, and treatment of HIV-infected individuals.  
          Expand  
          access to current treatment and patient management guidelines including  
          state-of-the-art care and information on clinical trials using multiple  
          technologies such as, but not limited to, on-line access AIDSTRIALS  
          and AIDSDRUGS data bases and voice access (HIV/AIDS Treatment Information  
          Service and the AIDS Clinical Trials Information Service). Improve  
          current and develop and evaluate new techniques for the two-way communication  
          of information to scientific and lay audiences, particularly to hard-to-reach  
          populations. Support  
          community groups to access HIV/AIDS information resources in their development  
          of educational materials. Develop  
          and disseminate educational information. Enhance  
          understanding of HIV and basic and clinical research processes by health  
          care providers, community-based HIV/AIDS service organizations, and  
          persons with HIV/AIDS. Develop  
          mechanisms for rapidly disseminating information on research in progress  
          to the research community in order to increase collaboration, reduce  
          duplication of effort, and enhance the discovery process. Enhance  
          communication with the pharmaceutical industry concerning research on  
          the development of therapeutics and vaccines. Communicate  
          and exchange information internationally on topics such as prevention  
          and treatment information, patient management guidelines, and research  
          results that impact on the care of HIV-infected individuals, particularly  
          in developing countries. Support  
          the exchange of basic, clinical, and behavioral research information  
          at community, regional, national, and international conferences and  
          workshops. Provide  
          on-line, in advance when possible, the full text of abstracts and other  
          information from scientific meetings. Collect,  
          archive, and make available existing data from NIH-supported basic and  
          applied research for secondary data analysis. Disseminate  
          widely information concerning specimen repositories, including existing  
          repositories, specimens available and relevant information concerning  
          cohorts, contact people, and the process for obtaining access to samples.  
          Evaluate  
          the effectiveness of communication efforts by appropriate means, including  
          obtaining feedback from target audience members and information dissemination  
          intermediaries.  | 
 
    
    | Objective  
      #2 | Support  
      research to identify existing gaps in communications approaches, identify  
      existing strategies that are effective, and develop and test new and innovative  
      communication strategies that will improve access to and use of state-of-the-art  
      HIV information by all relevant audiences. | 
 
    
    | Description | Research:  
      Past assessments have identified important information needs and barriers  
      for relevant target audiences such as health care providers, service providers,  
      people with HIV and their advocates, at-risk populations, basic and applied  
      researchers, and the general public, and although significant communications  
      efforts have been initiated, some communities still may not be (1) receiving  
      needed information, (2) receiving information in a context appropriate for  
      the audience, (3) comprehending the information, or (4) translating the  
      information into action. New approaches are needed to ensure that the communication  
      of information resulting from research is optimally effective. | 
 
    
    | Action  
        Steps |  
        Develop,  
          test and evaluate innovative strategies for effectively reaching scientific  
          audiences with relevant HIV information. Investigate  
          how and under what circumstances different communication and dissemination  
          strategies influence the adoption of scientifically based HIV behavior  
          change interventions and clinical practice activities in various populations.  
          Identify  
          obstacles to information dissemination and develop and test possible  
          ways to overcome these obstacles. Assess  
          the information needs of, and sources of information used by, various  
          audiences, including biomedical and behavioral research communities,  
          health care providers, service providers, people with HIV and their  
          advocates, at-risk populations, and the general public. Investigate  
          the adoption of new technologies for disseminating basic and applied  
          research findings. Develop,  
          improve, and evaluate the interface between human factors and emerging  
          technologies for information exchange in HIV/AIDS. | 
 
    
    | Objective  
      #3 | Develop,  
      implement, and evaluate mechanisms that promote coordination and collaboration  
      on all current HIV/AIDS communication activities among NIH ICDs and with  
      other Federal and non-Federal groups. | 
 
    
    | Description | Coordination:  
      The scientific and lay communities look to the NIH as a central source of  
      information on HIV/AIDS. Since multiple NIH ICDs disseminate HIV/AIDS information  
      to these communities, coordination of efforts is essential. In order to  
      make more effective use of limited Federal dollars, increase efficiency,  
      make better use of new technologies, and ensure credibility with the scientific  
      and lay communities, there must be more collaboration and better coordination  
      of communication activities within the NIH and between the NIH and other  
      Federal Agencies, community groups, universities, and the private sector. | 
 
    
    | Action  
        Steps |  
        Build  
          ongoing partnerships between community-based organizations and basic,  
          clinical, and behavioral researchers through both the intramural and  
          extramural research programs to encourage exchange of information and  
          experience throughout the research process to enhance research, treatment,  
          and prevention efforts. For  
          example, this could be accomplished through requirements in appropriate  
          funding proposals to establish appropriate communication and coordination.  
          Promote  
          closer interagency collaboration within PHS on information dissemination  
          programs. Coordinate  
          collaboration among all ICDs in the provision of information about their  
          clinical trials for HIV/AIDS to the AIDS Clinical Trial Information  
          Service. Maintain  
          an interface with the Cancer Information Service and PDQ to provide  
          information on clinical trials for AIDS-related malignancies. Support  
          use of HIV/AIDS resource on the Internet to facilitate domestic (NIH  
          and non-NIH) and international research collaboration and data sharing.  
          Continue collaborations with the United Nations/World Health Organization  
          (WHO) AIDS program, the Pan American Health Organization (PAHO), and  
          international AIDS agencies or societies to obtain and disseminate information  
          about international clinical trials. Collaborate  
          with public and health sciences libraries to facilitate community group  
          access to needed information. Work  
          within DHHS, including HCFA, and with the private sector in the development  
          of medical standards of care for determining guidelines for reimbursement.  
           | 
 
    
    | Resources | FY95 | FY96 | FY97 | 
 
    
    | $  
        16.2 million | $  
        17.9 million | $  
        17.7 million | 
 
    
    | PopulationsServed
 | All  
      populations. | 
 
    
    | ConstituencyInvolvement
 | Researchers,  
      clinicians, community and patient representatives, and NIH-affiliated advisory  
      councils and committees. |